Recent Posts

Pages: 1 2 [3] 4 5 ... 10
21
Survivor Room / Re: If there was a cure for autism...
« Last post by DizzyJay on November 03, 2022, 03:42:55 PM »
After reading many online articles/blogs etc and more books than I can count the subject has cropped up. Providing there were no risks, if there was a cure for autism would I take the tablets/have surgery/whatever?

Personally I think I would. I feel that being autistic has made living a fulfilling life as I want to live it impossible. It has messed up relationships, jobs and so many more things that I don't wish to post here. If I could cure this and no longer have to deal with this crap, I would do it.

On the other side of the debate are those who view autism almost as a gift or at least an integral part of their identity that they love having. This is baffling to me because being autistic is, at least for me, exhausting, confusing, frustrating, distressing and can be downright frightening when having sensory overload/meltdowns etc and knowing that there's no cure makes me feel truly hopeless at times.

I'm not sure why I'm posting this really, it's just something that's been on my mind lately. I figured that maybe someone here can understand a little since there seems to be quite a few people here with autism diagnoses. I suppose this is little more than a rant that I just needed to type out I guess.

You already know some of my story from my introduction Vermilion
Gosh when I think back to my early years .. how I was .. the things people related to me & termed as shyness, clumsiness, stupidity, incapability, naughtiness, oh the list goes on. I was expected to be "normal" without knowing what "normal" is  :doh: I still live with the feeling that I'm ugly & useless but I battle it, I survive, I win best as I can
I don't want to turn this into banging my own head ... but yes I know where you're at with this post. Not to mention the many job interviews I failed coz I wasn't the right person, being alone & people being like ships in my life.
By the time most of my idiosyncrasies & neurodiversities were recognised I was already on an anti depressant that is meant to manage all kinds of MH disorders. The ones I'm on now do help ....
However if there's anything I would change for me .. it's not a cure ... it's taken me a long time to love me for who I am .. well at least 70% of the time.

What I would change though is that the things which make a person differently abled are understood and accepted within the neurotypical world. I wouldn't want to be mollycoddled the way some young newly diagnosed individuals are mollycoddled. I would simply want to be understood and accepted so that I would have learnt to understand and accept myself during the years of development that matter most in any person's life. Sure it might not have changed the fact that I live with depression or the ways I was physically & sexually abused .... but maybe .. just maybe .. I'd have been better equipped to find my own voice when I was still a youngster than when I'd reached my middleage & maybe just maybe in turn I wouldn't have been through so much mental & emotional abuse from those who sort to control me, own me, abuse & then abandon me.

Sorry this might sound like an angry PLOM on my behalf ...... here & now is always easier to live with than all the "what it's". Regardless of all the 💩💩 .. I count my blessings I continue to survive .. try to thrive .. that today isn't such a great day & tomorrow is another day.
I guess all this is part of allowing myself to be known as I am within this forum?
22
Survivor Room / One of those days
« Last post by DizzyJay on November 03, 2022, 03:11:04 PM »
  :mf_sleep11: it happens from time to time

My eyes don't want to stay open 😴 I wake but can't stay awake 💤 but oh the chaotic dreams 😭 nothing makes sense  :confused0006: I really don't want to sleep 🥺
23
Survivor Room / Re: If there was a cure for autism...
« Last post by Gerard on October 15, 2022, 12:11:57 PM »
How do y'all find routine, easy to do/manage? I wish mine was better, but black and white thinking scuppers it, a lot.
24
Research Topics / Survey on perceptions of self-harm: Research Invite
« Last post by jack.k on October 07, 2022, 01:17:25 PM »
I'm doing research at Aberystwyth University looking at self-harm from a lived experience perspective. In my personal experience there's a huge variation in how clinicians understand self-harm and I'm hoping this can inform their views and understandings.

It'd help if as many people as possible with experience of self-harm (past or present) fill in this survey so we can get as many different views as possible.

More information is on this link including a TW before you start the survey.
https://aber.onlinesurveys.ac.uk/perceptions-of-self-harm
25
Research Topics / Re: Repetitive self-harm study - Research participants needed
« Last post by MWresearch on October 06, 2022, 02:51:46 PM »
 :sign0085: Just to say we are still recruiting for this study. :sign0085:

Recruitment is likely to continue into next year, so please get in touch if you are interested in participating or would like to know more


We would really like to speak to people who identify as male and have experience of self-harm, please do get in touch if you would be interested in participating in our study!

Thank you so much  :mademyday:
26
Archived research topics / Re: Health Needs Assessment - Devon. Sept-Oct 2022
« Last post by Rob on October 06, 2022, 10:33:24 AM »
This is a reminder that there is only 1 week left to complete our surveys around self-harm support provision across Devon.
 
We are helping Public Health Devon create a Health Needs Assessment specifically for groups affected by self-harm across Devon.
 
Therefore, we ask you to please complete/share the following survey (5-10mins to complete) with your networks of parents/families/carers, and professionals working in this support/service.
 
Survey For Families/Carers - https://forms.gle/DqbqCJr5VcjfeiDq9
 
Survey For Professionals - https://forms.gle/jnAXe1oxMsU5Z3sn7
 
This survey will be open between 1st September 15th October.
 
The information gathered in this questionnaire will be used to:
- Map current services and support already in place for parents/guardians, carers and siblings of people who self-harm/have self-harmed across Devon.
- Collate views of parents/guardians, carers and siblings (where possible and appropriate) of people who self-harm/have self-harmed in Devon
- Providing evidence of gaps and giving suggestions for service/support and system improvements in Devon (particularly around improving access to information and support)
 
In order to produce the most accurate Health Needs Assessment for self-harm across Devon we need as many voices involved as possible, so we thank you for your support. 

Kind Regards, 
Chloe Lawson
07505783627
www.YouthMentalHealthFou ndation.org
27
Research Topics / Repetitive self-harm study - Research participants needed
« Last post by MWresearch on September 14, 2022, 01:50:47 PM »
 :sign0085: Seeking research participants for doctoral thesis into repetitive self-harm  :sign0085:

  • Are you aged 18 or above with experience of repetitive self harm?
  • We define repetitive self-harm as more than 5 times within one year

We are keen to hear about your experiences of repetitive self-harm and your thoughts about factors which contribute to repetitive self-harm, through 1:1 interviews with the lead researcher. These interviews can be conducted via Zoom, over the phone or face to face - whatever you would prefer.

My name is Millie Witcher, I am a Trainee Clinical Psychologist with lived experience of repetitive self-harm. I am the lead researcher on this study. The research is for my PhD thesis and has received ethical approval from the University of Hertfordshire ethics committee.

Participation in this study is paid, in the form of a 10 voucher.

Please get in touch to find out more!  :welcomeani1:

Email: [email protected]
Twitter: @DClin_SelfHarm
28
Archived research topics / Health Needs Assessment - Devon. Sept-Oct 2022
« Last post by Rob on September 06, 2022, 03:40:31 PM »
We are helping Public Health Devon create a Health Needs Assessment specifically for groups affected by self-harm across Devon.
 
The information gathered in this questionnaire will be used to:

- Map current services and support already in place for parents/guardians, carers and siblings of people who self-harm/have self-harmed across Devon.
- Collate views of parents/guardians, carers and siblings (where possible and appropriate) of people who self-harm/have self-harmed in Devon
- Provide evidence of gaps and giving suggestions for service/support and system improvements in Devon (particularly around improving access to information and support)
 
Therefore, we ask you to please complete/share the following survey (5-10mins to complete) with your networks of parents/families/carers, and professionals working in this support/service.
 
Survey For Families/Carers - https://forms.gle/DqbqCJr5VcjfeiDq9
 
Survey For Professionals - https://forms.gle/jnAXe1oxMsU5Z3sn7

This survey will be open between 1st September 15th October.
 
In order to produce the most accurate Health Needs Assessment for self-harm across Devon we need as many voices involved as possible, so we thank you for your support.

Chloe Lawson
Project Coordinator-YMHF
www.YouthMentalHealthFou ndation.org
29
Survivor Room / Re: Post covid socialising (Grumble)
« Last post by Vermilion on July 31, 2022, 02:51:37 PM »
Thank you! :) I do live close to the local park run but it's clashing with something else at the moment. I'm hoping to attend in a few weeks time when things have settled down. The is for the info, I had no idea about park runs! :)
30
Survivor Room / Re: Post covid socialising (Grumble)
« Last post by Gerard on July 27, 2022, 09:22:59 PM »
Do you live near any parkruns? https://www.parkrun.org.uk

You can walk, run or volunteer or a combination of.

I've been going for 6 years. It's very social and people aren't glued to their phones and actually talk to each other. I highly recommend, it's a got a huge community feel, fun and welcoming. All body types and ages.
Pages: 1 2 [3] 4 5 ... 10