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Personally I would prefer the term service user rather than 'Experts by Lived Experience'. The word 'expert' implies a level of knowledge that is much higher than what I have and I imagine that the average person (i.e non professional) would interpret it this way.I also think that the term service user would be very apt if that's what you're specifically writing about.
I possibly should have added, if you do have any thoughts - then please just reply to this thread! Thank you  :)
Archived research topics / Any thoughts or perspectives on thesis wording please
« Last post by March345 on March 05, 2021, 11:02:25 AM »
Hi everyone,

Firstly, thanks so much for spending the time reading this and possibly offering your thoughts. I am a Trainee Clinical Psychologist, and currently my thesis is undergoing ethical review. The study is looking at service responses to repeated self-harm in adults. I've found quite a lot of the research is fragmented, and often focusses on just one perspective, often recruiting people who are actively engaged with services and missing out on key voices! Therefore, I plan to interview clinicians, people who may be currently using services, or may have used them in the past but do not currently for whatever reason that may be.

At this stage though, I would be really keen just to hear people's thoughts and perspectives on the wording I am planning to use (at this point) in the participant facing documents. For example, does it make sense? Does it feel inclusive, or possibly exclusive? Would you suggest changes? The main phrases I'm hoping to collect thoughts on are as follows:

Experts by Lived Experience - this is the term I'm thinking of using to refer to people who repeatedly self-harm, and either currently, or have in the past received support from services in relation to self-harm. I have made a deliberate move away from using the term 'patient', due to associations with the medical model, and the fact that some people may not be/identify as a 'patient'
Experts by Professional Experience - this is the term I'm thinking of using to refer to people who provide services in a professional capacity e.g. clinicians, care staff
Repeated self-harm - I'm using this term to refer to self-harm on more than one occasion, although prior to interviewing participants I will ask how they wish to refer to this b/h
Service Responses - I'm using this term to refer to any responses from services in relation to self-harm, this may be A&E, GP, during therapy, contact with third party organisations e.g. Samaritans

Any thoughts or views would be really valued and appreciated. Thanks again for your time, any questions etc. please just let me know :)

Archived research topics / Self-harm thoughts and behaviours in the student population
« Last post by AZP on February 23, 2021, 09:25:30 AM »
Hello everyone,

Thank you for taking the time to read this post and consider taking part in this study. We are currently recruiting UK university students (aged 18 and above and who have experienced self-harm thoughts in the last three months) for an online study designed to understand how it might be possible to better help them manage self-harm thoughts and behaviours.
The study invites you to complete two questionnaires, three months apart. Each questionnaire will ask you about your self-harm thoughts and behaviours over the last three months and other thoughts/feelings you may have had. We understand this is a sensitive area, so please think carefully before taking part.

For more information and to take part in the study, please click on the following link:

Thank you, your help is greatly appreciated.

Survivor Room / MOVED: SH on feet/toes
« Last post by Rob on February 20, 2021, 07:23:27 PM »
This topic has been moved to Here and Now Room for best support.
Research Topics / Re: Self-harm in the therapy room (Research participants needed)
« Last post by Lorien on February 14, 2021, 01:31:01 AM »
Research Topics / Self-harm in the therapy room (Research participants needed)
« Last post by BethCC on February 09, 2021, 09:15:30 AM »
Research Participants Wanted

Have you ever used self-harm as a way to cope and talked about self-harm in your own personal therapy?

Who can take part?
- Aged over 18.
- Personal experience of Self-harm
- Personal experience of talking about self-harm within therapy.

What will happen?
- Participants will be asked to take part in a one-to-one interview (via telephone or video) where you will be asked about your experience of talking about your own personal self-harm within therapy.
- Interviews will last 1 to 2 hours.

Your information will be treated with the strictest confidence and will contribute towards research looking into peoples experiences of sharing and exploring their self harm within a therapeutic environment.

If you are interested in taking part in this study then please contact:
Elizabeth Crookes-Corr at: [email protected] or 07775426206

Please get in touch if you have any questions about the research or would like any more information.
Elizabeth Crookes-Corr

Archived research topics / Re: Your story can make a difference!
« Last post by Sara.CP on February 08, 2021, 06:12:29 PM »
Recruitment closed - Thank you!
Survivor Room / Re: Vaccination
« Last post by Lorien on January 27, 2021, 03:40:06 PM »
All done and got some sleep afterwards. It was ok, I use cards to explain which had the dual effect of communicating what I needed to and...really confusing them. They seemed a bit unsure if I was able to hear or understand them. But it is done and I'll know what to expect next time so it will be easier.
The room was small so that really helped, only 2 stations and they were set diagonally so no one could see anyone else. I had written and asked the to do my dominant arm as scarring is much less. She didn't say anything which was good. But I felt a bit bad for her as it's set up for them to do the left arm so she was a bit disoriented getting ready. Very tired today, but given I only slept for an hour or so. Just taking it easy today.
Survivor Room / Re: Vaccination
« Last post by Turtle on January 27, 2021, 07:36:22 AM »
Regarding scarring, when I had my Covid vaccination it was so far up my arm I didn't even actually have to take my top off. In fact, I was ready to take it off (super keen to be vaccinated!) - but the vaccinator stopped me and said I'd only need my shoulder out. I had a vest top on and a baggy shirt over the top, so it was easy enough to take out my shoulder and the top of my arm without showing my forearms (and the majority of my scarring). Do you have something baggy/easy to slip off your shoulder? It's so cold that I think a lot of people want to stay as dressed as possible!

They give you a choice of arm to be vaccinated in, but they do suggest having it in your non-writing arm as it can make your arm quite dead and sore for a couple of days.

I agree that a diazepam might be helpful to stay calm if you need it :hug2:

I hope you've managed to get some sleep and hope it goes well today! My vaccinator was lovely - I can be quite nervous about needles, but she kept me calm and put up with me nervously rabbiting on about everything under the sun. :hug2:
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