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NSHN Forum Support & On Topic Forums. Some additional boards are viewable to members only => Survivor Room => Topic started by: Terri on March 17, 2012, 06:21:15 PM

Title: Coming off of Depakote - To Tell?
Post by: Terri on March 17, 2012, 06:21:15 PM
I saw my psychiatrist last week and he's agreed to let me come off of the Depakote that I take. He was a little reluctant as neither he nor my social worker have known me off it, so he wasn't sure what effect it's having. He said he'd trust me though and, as long as it's a gradual process and I agree to go back on it should things slip, he's OK with it. Psych is writing to my GP and I'm going to reduce the dose slowly over four months, with GP being in charge of the prescribing.


Social worker is seeing me in about a month and said she'll keep an eye on things, as we should know if the reduction is having any effect by then. I'm also to look out for any warning signs and report them back to SW as soon as possible. Another thing that was mentioned was telling the people around me that I'm coming off of it, and it's that I'm worried about. My Mum would be my person of choice, but I'm in two minds. What if she worries and starts to see signs that aren't really there? What if she worries unnecessarily? I don't want her to be looking out for things which might not occur - it would feel like I was being watched and that would do my head in. At the same time, I'm aware that she might spot things that I miss, and so might pick things up quicker and stop them getting worse earlier.


Not really sure what to do. To tell her or not? ::)
Title: Re: Coming off of Depakote - To Tell?
Post by: greenday on March 17, 2012, 08:08:30 PM
its eseyer to keep it to your self  :hug2:
Title: Re: Coming off of Depakote - To Tell?
Post by: findingmyway on March 17, 2012, 09:47:21 PM
I think its a really difficult decision to make but I would suggest telling your mum hun. Maybe talk through with her too about your worries that she will look too hard and see things that arent there, and that you dont want to be constantly watched. But, like youve said, she may pick up on things that you dont notice, and quicker than your SW would.

And, if you dont tell her hun, is it something that will make you more stressed? Having to try to hide it from her??
Title: Re: Coming off of Depakote - To Tell?
Post by: Bea on March 18, 2012, 08:11:54 AM
I think your mum would be the ideal person - she's one of the ones that knows you best of all & will say if she is concerned.

Tell her exactly how you are coming off - with gradual reductions and GP/SW support - hopefully this will reassure her.  As your mum, she has only your best interests at heart, and if she says something you disagree with, I'm sure you would be able to tell her / reassure her!
Title: Re: Coming off of Depakote - To Tell?
Post by: Lily Kym on March 19, 2012, 05:14:46 PM
Tell her exactly how you are coming off - with gradual reductions and GP/SW support - hopefully this will reassure her.  
+1

Hopefully she will feel not only reassured that you're receiving help to slowly come off of it, but also she will be pleased you're telling her. xx xx :hug1:
Title: Re: Coming off of Depakote - To Tell?
Post by: greenday on March 19, 2012, 06:12:53 PM
its great your getting help good luck  :hug1: :1027:
Title: Re: Coming off of Depakote - To Tell?
Post by: Terri on March 25, 2012, 07:24:37 PM
Thank you. :hug2:


I talked to my Mum about coming off it today and she was great. She had sensible suggestions and was positive about it. She said she'll let me know if she notices anything and that, though she has my social worker's phone number, she'll try and talk to me before phoning her if she feels she needs to.


She also said that she hasn't seen me this well/happy/motivated in years, which was nice to hear. My Nan said the same thing not so long back - it's nice to know that other people see the difference that I feel. :)
Title: Re: Coming off of Depakote - To Tell?
Post by: Lily Kym on March 25, 2012, 07:26:58 PM
Well done hun. You're doing really well xx :hug1:
Title: Re: Coming off of Depakote - To Tell?
Post by: Skye on March 25, 2012, 08:32:54 PM
 :) :hug1:
Title: Re: Coming off of Depakote - To Tell?
Post by: sparkledust on March 25, 2012, 09:30:34 PM
 :1059:
Title: Re: Coming off of Depakote - To Tell?
Post by: Bea on March 27, 2012, 03:05:32 AM
Well done for having that conversation with your mum, that was very brave.  I'm glad that she can be a positive support for you  :hug2:
Title: Re: Coming off of Depakote - To Tell?
Post by: greenday on March 27, 2012, 08:10:46 AM
im so happy for u how r u doing right now  :13330:
Title: Re: Coming off of Depakote - To Tell?
Post by: riot-grrrl on March 27, 2012, 10:06:45 PM
im so pleased to hear your doing good hun, i'm interested to know how you get on with reducing your depakote as i'm on this and have been for years, i've considered reducing and coming off slowly but its a scary step to take! i think you did the right thing in telling your mum, she is there to support you after all. glad to hear you feeling so positive :)
xxx