Recent Posts

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Survivor Room / Re: If there was a cure for autism...
« Last post by Gerard on June 12, 2025, 12:40:14 PM »
I had some grief before acceptance. It took a long time.

I don't make the comparison in that way because I find 'mild', 'severe' somewhat ableist and it usually comes from NTs.

I will rant about one thing and that's what I call casual diagnosis. People diagnosing you behind your back or diagnosing you 30 seconds after they've met you. I've experienced both and seen it done to others. This is the downside of 'awareness', imo. Disgusting, entitled and undignified and yep, again, largely NTs who do this. There are things people say they wouldn't dare do so about Down's syndrome or something else. Yet their BS about autism is generally met unchallenged.

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Survivor Room / Re: If there was a cure for autism...
« Last post by Vermilion on June 11, 2025, 11:08:14 PM »
I really wish that I could, I've got some problems with memory and attention myself. Zero support for adults post diagnosis. I'm not even under CMHT anymore, they know almost nothing about autism. DBT was helpful but there's not much else that they can do for me.

It's so b***** exhausting to try and navigate adult life with these problems, physically and emotionally exhausting. It's so difficult to explain why I can't remember the simplest everyday tasks, yet I can waffle on about my 'special interests' for hours and I can remember every detail about them. I can tell you everything there is to know about rabbits, but can't remember to take my meds, shower, eat, do laundry etc   ::) Oops, that reminds me, I haven't taken ,y meds today....  ::) I've been finding things like this really frustrating lately.

On a sort of a side note, does anyone else doubt their diagnosis when they meet someone who has a very severe case of autism? I'm on the milder part of the spectrum (aka Asperger's) and when I meet anyone who struggles more I think things like 'See, I'm not like that, there's nothing wrong with me. No reason that I can't function' etc I frequently doubt my diagnosis when I meet those who struggle more than I do. It took a few years of discussions with care coordinators, therapists and psychiatrists to really accept my diagnosis in the first place. The doubt always creeps in when I meet the more severe cases.
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Research Topics / A self-compassionate wound care approach to non-suicidal self-injury
« Last post by JoannaBlackburn on May 28, 2025, 06:22:45 AM »
Hi everyone.

I am a researcher at The University of Huddersfield and I am looking to develop an intervention based in primary care (GP services/community services) to support people who self-harm, combining self-compassion and wound management, and staff education.

We are in the really early stages of developing this idea at the moment and would love to get some feedback from people as to what they think of the idea and if they feel it might be useful.

I am in the process of obtaining University ethical approvals for undertaking these activities.

Background:
Our research team has found evidence to suggest that people do not always receive good support and care from healthcare services, often due to a lack of education/training of staff, which can sometimes mean that people do not always seek help for self-harm injuries when they need to.

Our idea:
Our proposed intervention would involve developing a resource (either leaflet/digital app) that would give people advice/education on how to be more compassionate to themselves.

Self-compassion means treating yourself with kindness, understanding, and acceptance, especially when you are struggling or feeling inadequate.

This would be supported by a 'rescue pack' which would involve wound care materials (such as wound dressings, wound cleaning materials) to enable people to self-manage their wounds at home.

There would also be a staff education element, which would aim to educate healthcare professionals (such as community nurses/GP staff) about how to be more compassionate towards people who self-harm.

We think people could access these resources from their local GP surgery/pharmacy, which would enable people to manage their own wounds at home and seek help when they need to.

Your views:
We would love to hear what you think about this proposed intervention and would really appreciate any feedback you can offer on if you think this would be valuable. We would particularly like to find out about:

Has there been a time when you felt supported or understood during treatment? What helped?

Have you ever had a negative or distressing experience with wound care? What could have made it better?

If there were a resource (e.g., booklet, video, website) to help people care for self-harm wounds compassionately, what should it include? What format would you prefer for such a resource?

Would you use a resource like this? Why or why not?

If you would like to offer any feedback on our idea, I would love to hear from you. Please either send me a direct message, reply to this message or email me directly at [email protected].

Any information you provide will be kept completely confidential.

Many thanks in advance.

Joanna
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Survivor Room / Re: If there was a cure for autism...
« Last post by Gerard on May 27, 2025, 05:57:37 PM »
Did anyone have a cognitive assessment done? I never did. Looking into it now due to working memory and attention problems.
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Research Topics / Interview study Mental health staff with experience in youth suicidal behaviours
« Last post by Attachment-SI research on March 17, 2025, 12:02:19 PM »
Hi, I am a student at the University of Manchester conducting an interview study to explore mental health staff’s perspectives on young people’s suicidal behaviours.

What’s Involved?
You will be invited to take part in an interview.

Who Can Take Part?
Mental health staff who have previously or currently worked with young people (aged 16-24) experiencing suicidal thoughts or behaviours.

How to Join:
If you are interested in participating, please complete a brief screening questionnaire by following this link (https://www.qualtrics.manchester.ac.uk/jfe/form/SV_bQOxJvIr3m9eqdU) to check your eligibility.
After receiving your responses, we will contact you as soon as possible.

Your help will allow us to learn more about youth suicidal behaviours and will be invaluable to our research.
Many thanks for your support.
If you have any questions, please let me know.
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Research Topics / Re: Survey study-18-24 years old-Attachment and Suicidal ideation
« Last post by Attachment-SI research on February 25, 2025, 12:26:07 PM »
Quote from: Attachment-SI research on February 17, 2025, 12:00:09 PM

We are looking for participants. If you are between the ages of 18 and 24, please consider joining our study.

Hi everyone! I am a student at the University of Manchester conducting an online study to explore how relationship insecurity may influence thoughts about life not being worth living among young people aged 18-24.

What’s Involved?
Participate in three online surveys: one baseline survey and two follow-up surveys, each spaced one month apart.

Who Can Take Part?
Young people aged 18-24.
Comfortable completing surveys online and in English.

How to Join:
Simply click on this link (https://www.qualtrics.manchester.ac.uk/jfe/form/SV_9HWTMca7yIZkgv4) to get started!

Your participation will make a valuable contribution to understanding this important topic. :welcomeani1:

You'll be offered voucher for your time and inconvenience.

If you have any questions about the study or need further information,please email:
[email protected]

Thank you for your help!
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Research Topics / Survey study-18-24 years old-Attachment and Suicidal ideation
« Last post by Attachment-SI research on February 17, 2025, 12:00:09 PM »
Hi everyone! I am a student at the University of Manchester conducting an online study to explore how relationship insecurity may influence thoughts about life not being worth living among young people aged 18-24.

What’s Involved?
Participate in three online surveys: one baseline survey and two follow-up surveys, each spaced one month apart.

Who Can Take Part?
Young people aged 18-24.
Comfortable completing surveys online and in English.

How to Join:
Simply click on this link (https://www.qualtrics.manchester.ac.uk/jfe/form/SV_9HWTMca7yIZkgv4) to get started!

Your participation will make a valuable contribution to understanding this important topic. :welcomeani1:
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Research Topics / Re: Exploring Young Adults' Experiences of Peer Support Networks
« Last post by CL on November 26, 2024, 11:16:26 AM »
Hello everyone,

Thank you to those of you who have participated! It is much appreciated.

To give ourselves time for analysis, we will be closing recruitment at the end of the week.
If you do wish to participate, please do so by 2nd December - you can follow this link (https://lancasteruni.eu.qualtrics.com/jfe/form/SV_5nxMne950xj2Kpg) or email us at [email protected] or [email protected] if you'd rather complete an interview. If you participate through the questionnaire, please do write as much as you feel comfortable sharing.

Thank you again! I hope I am able to do your experiences justice.

Charlotte

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Research Topics / Seeking people with lived experience of suicide ideation - online survey 15mins
« Last post by epsi_research on November 15, 2024, 03:57:06 PM »
Hello, I'm a trainee clinical psychologist looking to hear from people with lived experience of suicide ideation, in the hope to inform future intervention, practice and support. This is an online survey exploring the relationship between emotion processing and thoughts of suicide. Your voice is appreciated.

Here is the link: https://www.qualtrics.manchester.ac.uk/jfe/form/SV_dio7PPAKImOjNNc

This study is looking for people who are:

·      Aged 18 or above, and

·      Have had thoughts about suicide in the last 6 months

People can often find it hard to understand and respond to their emotions. This may make some people more likely to think about hurting themselves or taking their own life. This research aims to find out more about how we process our emotions and the relationship between this process and thoughts about suicide.

The study will ask participants to complete an online survey about emotional processing, suicide ideation and related topics. It is estimated to take 15-20 mins.

The survey is anonymous and there is a prize draw entry (optional).

Please prioritise your own safety when considering taking part. We ask that those who are experiencing current thoughts of suicide do not complete the survey at this time; support resources are available on the webpage and we will welcome your responses at later date.

Here is the link: https://www.qualtrics.manchester.ac.uk/jfe/form/SV_dio7PPAKImOjNNc

Best wishes always, and thank you
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Survivor Room / Re: Finding it hard
« Last post by jackalsodawn on October 20, 2024, 10:41:02 PM »
Hey, I know that struggle so well. I haven’t managed to stop for more than a week since I started so I’m probably not the best person to give advice, but I know how hard it is and I know you’ve done so well to fight against the urge, and to reach out for support here. Is there anything you enjoy doing that you might be able to do to distract yourself?
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