Author Topic: Same old crap *Trigs*  (Read 417 times)

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Online Lorien

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Re: Same old crap *Trigs*
« Reply #20 on: September 26, 2019, 10:22:11 PM »
This might be way out but... Has anyone talked with you about sensory regulation? It was a real game changer for me. I know that doesn't mean that it would help everyone, but as a concept it might be worth considering. Despite the significant interventions of a variety of professionals including 6years of 1-1 Psychotherapy, understanding my sensory needs was the only thing that made a huge difference.

I genuinely believe that the risks are so high for people with ASD because services aren't set up to get it and they focus on 'what happened' over and over again, but miss that huge element.
“Dark times lie ahead of us and there will be a time when we must choose between what is easy and what is right.”

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Offline Vermilion

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Re: Same old crap *Trigs*
« Reply #21 on: September 27, 2019, 12:01:48 PM »
I'm just not sure if I can cope with the appeal nonsense again irrespective of whether the decision is correct or not. I'm sick of justifying myself to others whether it's Crapita, the DWP or others around me and I despise myself for even trying to get it anyway. I'll probably chat to my mam about it since she'll want to know but I really don't want to deal with this bull****.

I am actually doing sensory work with the OT and have just finished a 'sensory profile' but I already seem to be doing everything that I need to. The problem is that it's not always practical to use my coping methods. I just hope the OT can help..  ::-\: My sensory issues tend to be made worse when I'm anxious and then the worse my sensory issues get the worse my anxiety gets until it builds too much. I have a lot of work to do on that front.
RIP Clyde - November 25th 2018
RIP Bonnie - November 24th 2018
RIP Columbus - August 22nd 2018
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Online Tucan

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Re: Same old crap *Trigs*
« Reply #22 on: September 27, 2019, 02:47:52 PM »
I did a sensory profile when I was in hospital. It helped. Happy the ot Is helping you. You don't have to justify yourself to anyone. You are poorly and as deserving of help and support as much as I am or anyone else on here.
now hand over the tea bags and we won't have any trouble.... :police:


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Offline Rob

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Re: Same old crap *Trigs*
« Reply #23 on: September 27, 2019, 03:09:51 PM »
It's that little feedback loop that's the problem, and when you're under the additional pressure of work that things turn bad for you. Until that loop can be managed successfully, you won't be in a position to work again - ergo you need continued support until you reach that time. You've made a lot of positive steps in understanding yourself in the time that you've been away from work, so it isn't time wasted.
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Online Lorien

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Re: Same old crap *Trigs*
« Reply #24 on: September 27, 2019, 08:30:10 PM »
Its great that they are helping with sensory stuff, but is that more from an SPD perspective? - trying to manage sensory input and 'desensitise' etc?

I guess I am asking because I found it upside down. Working on what is difficult and trying to make it less difficult rather than finding practical ways to make what works more helpful. I did a lot of the exploring of this prediagnosis in a very unscientific and not lead by anyone way so maybe it isn't helpful to other people but because it was so pivotal it seemed worth a mention. I guess it is a portable way of building a feeling of safety when you feel anything but safe. I don't want to hijack your thread or take it off at a tangent. So i'll shush now, but feel free to PM if it might be useful at any point.
“Dark times lie ahead of us and there will be a time when we must choose between what is easy and what is right.”

“It is our choices...that show what we truly are, far more than our abilities.”

“Happiness can be found in the darkest of times, if one only remembers to turn on the light.”

Offline Vermilion

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Re: Same old crap *Trigs*
« Reply #25 on: September 28, 2019, 07:23:47 PM »
The OT specialises in ASD, I was referred to her specifically. I thought that SPD was just like the sensory issues with ASD but without the other autistic traits. I did heaps of research just after my dx ( I didn't want to inadvertently influence the assessment) and I'm not sure if I could manage sensory issues as you describe but it is worth considering..

Re PIP, I think it has simply emphasised how crap I am, the assessment was humiliating and degrading. How can say such embarrassing things in front of family members and the tribunal again?? :no: Honestly, I'm doubting whether I'm really as bad as I feel, maybe I'm just one of those self entitled millennials that the media always bitches about and what I really need us a b***** good  :fryingpan:!

I've finished the antibiotics today and the nurse said the b**n is starting to look a bit better and it doesn't smell as badly now. Hopefully that'll be the last of the antibiotics that I'll need, I do worry that the amount I take is going to stop them working properly for other serious issues. You'd think that'd stop me harming but I still do it. Still, at least it's healing now.
RIP Clyde - November 25th 2018
RIP Bonnie - November 24th 2018
RIP Columbus - August 22nd 2018
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Online Tucan

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Re: Same old crap *Trigs*
« Reply #26 on: September 28, 2019, 07:27:13 PM »
Bless you. Welldone for finishing your antibiotics and looking after yourself. Autism is complex. You are doing well. Happy you have an understanding ot.
now hand over the tea bags and we won't have any trouble.... :police:


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Offline Vermilion

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Re: Same old crap *Trigs*
« Reply #27 on: October 03, 2019, 11:45:48 AM »
CC wants me to keep a diary of my SH. I feel weird about this  ::-\:. She said that if I can't note actual 'episodes' then try and make a list of methods that I use. There are thoughts in the back of my mind that are telling me that I need to SH to prove myself. I know that it's irrational and I don't think that I'd actually SH for that reason but I'm worried that if I don't SH then I won't get any treatment and I'll be discharged.
I can only see CC every two weeks because of PIP, it costs a lot in transport so I'm alternating each week and seeing OT one week and CC the next. Even that's a struggle but if it's dry I'll try and walk there but I can't rely on the weather.
I still need to ring CAB to try and sort a reconsideration out since I don't know what I'm doing with this stuff. It's hard and I'm shaking with the stress/anxiety it's causing.  :(
RIP Clyde - November 25th 2018
RIP Bonnie - November 24th 2018
RIP Columbus - August 22nd 2018
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Online Tucan

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Re: Same old crap *Trigs*
« Reply #28 on: October 03, 2019, 12:28:37 PM »
Can were really helpful to you last time, call them and make an appointment. These things are time sensitive.
now hand over the tea bags and we won't have any trouble.... :police:


'Sigh no more ladies sigh no more for men were deceivers ever'

Offline Vermilion

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Re: Same old crap *Trigs*
« Reply #29 on: October 03, 2019, 02:06:29 PM »
I have to go to the drop in thing and it's too crowded. I guess it's tough sh**, I give up.

I have no idea how I can afford transport to MH appointments now. I can't keep doing this, I'm panicking again.

I need to control my breathing and get my sh** together. I need to SH.  :(
RIP Clyde - November 25th 2018
RIP Bonnie - November 24th 2018
RIP Columbus - August 22nd 2018
:bunny: :bunny: :bunny: :1027: