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91
Survivor Room / Re: Uncertainty with my future MH care.
« Last post by Tucan on March 31, 2020, 01:37:52 PM »
Ramble away all you want.
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Survivor Room / Re: Uncertainty with my future MH care.
« Last post by Vermilion on March 31, 2020, 11:22:16 AM »
Yeah, me too. I've had some some absolutely sh** MH workers in the past so I'm always relieved when new workers are nice!

Spoken to CC this morning, I'm okay at the moment so it's was mostly just a catch up. I have been worried about getting some supplies in but there are organisations that can help if I get stuck because apparently I'm a vulnerable person because of my MH and medical issues. I find it difficult to accept that, I'm certainly not seriously unwell like others are nor am I elderly/wheelchair bound etc. If I get desperate I might use the ones that charge and leave the free services for those who really need them.  ::-\:

I'm copying ok with lock down at the moment, in many ways the empty streets make it easier for me to get out and about because there's no one trying to chat to me all the time and there's less noise from traffic. In other ways it's harder because there are a few medical issues that I can't get sorted out and I'm worrying that this will continue for a long time. I'm keeping busy with decorating for now and I have the buns for company. Plus, I'm friends with the dog nextdoor and there are chickens and horses opposite me that I feed and I like watching the birds around the feeder. I feel like if people would stop panic buying this wouldn't be such a cluster f***.

CC and psychologist are sending me some info about help that I can get and some extra DBT stuff to work through if I struggle.

I just feel a bit...  ::-\: at the moment but I'm 'safe' for now. I'm glad that I have this place to ramble away. :)
93
Survivor Room / Re: Aspergers / High functioning autism assessment
« Last post by Vermilion on March 31, 2020, 11:04:58 AM »
Oh, I know what you mean with the masking, a social interaction leaves me drained for days. Well done for managing to work as well, I'm hoping to be able to do that one day too.

I wasn't dx'd until 30 (32 now). Apparently girls are especially good as masking, so much so that ASD was considered to be almost exclusively a boy thing. Many people on the 'high functioning' end of the spectrum seem to only get a dx after a referral to MH services rather than those who are severe who tend to get dx'd at school. I do wish that I was dx'd earlier, it's rally difficult to break long term behaviour and thought patterns and learning social skills earlier would have prevented a lot of crap from happening. I share my experiences with researches to help other kids, hopefully they'll at least get the help they need earlier on.

In my local area there organisations that work with people who have MH/ASD to help them find work. It might be helpful to explore suitable jobs. I did a 'sensory profile' with an OT a while back, it helped to get an idea of suitable work environments i.e quieter, structured, less social etc. While I'm too 'unstable' at the moment I know that I'll be able to get back in to work in the future. I realise it's difficult with the lock down but once it's all over you could probably do something.
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Survivor Room / Re: Meds....
« Last post by icicle on March 30, 2020, 05:33:31 PM »
Perhaps she said, 'not part of my training', as she didn't want to be seen to be criticising a different profession?
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Survivor Room / Re: Losing it, our mental health emergency
« Last post by Lorien on March 30, 2020, 03:56:12 AM »
I guessed that the girl had Autism.
So did I and for once my partner didn't complain that I always say that, tbf I'm usually right.

It was a good series but definitely worth considering if your in a good place to be watching before pressing play
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Survivor Room / Re: Meds....
« Last post by Lorien on March 30, 2020, 03:53:22 AM »
It was very odd. I'm not sure if I will continue it or not. They suggested a few books to read and asked a few questions, all of that was fine. I don't know if it is because of her background but she seemed to continually be working on the assumption that me being autistic and my partner not being would cause problems. I don't think it does. I tried to say that and it felt like she thought it was naive to think that. We are not a typical couple in many ways but that works out well for us. We were getting married in a few weeks until covid-19 rules banned weddings. We certainly have the 'in sickness and in health' bit down. She also seems very firm on bipolar usually being an erroneous diagnosis with autistic people because doctors don't know what to make of how they present. Again, I don't really agree. I asked her outright if she was saying she didn't agree with them saying that about me and she backed off with 'not part of my training' but she definitely made out she didn't agree before that. Given its something I'd like to discuss, it doesn't fill me with confidence. Before I even consider any of that, I really need to iron out if she knows people that are significant - she was way too intense around my dad's (public facing, community based) job for me not to want to ask. If she does know him, I don't need to worry about the rest because it is a total deal breaker. I'm just not sure how I do that.
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Survivor Room / Re: Uncertainty with my future MH care.
« Last post by Tucan on March 29, 2020, 04:30:34 PM »
Bless you. Happy she sounds nice.
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Survivor Room / Re: Aspergers / High functioning autism assessment
« Last post by Gerard on March 29, 2020, 02:35:03 PM »
Yes, it's the AS that's intrusive. I've known since a young age that I was different. The diagnosis was confirmation, though it took some time to accept and it found me rather than being something I actively sought out. I've a cousin who was diagnosed much younger, resources were more available when he was growing up.

I'm fortunate enough to have a job (p/t). Trying to find another as my boss is not good. With another recession coming it's going to be hard for everyone.

Forgot to mention camouflaging/masking. It's exhausting.

https://link.springer.com/article/10.1186/s13229-019-0308-y

https://www.sciencedirect.com/science/article/pii/S221503661930224X

http://docs.autismresearchcentre.com/papers/2018_Hull_Development_and_validation_of_camouflaging_autistic_traits_questionnaire.pdf

https://medicalxpress.com/news/2020-02-tool-hidden-autism-adults.html

https://journals.sagepub.com/doi/full/10.1177/1362361319878559

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Survivor Room / Re: Aspergers / High functioning autism assessment
« Last post by Vermilion on March 29, 2020, 01:51:37 PM »
I'm not actually sure which one Gerard was talking about. I tried to address both sides. I suppose for me being autistic is crap but having a dx has helped a lot.
I could have completely misunderstood what he said though!  ::)
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Survivor Room / Re: Uncertainty with my future MH care.
« Last post by Vermilion on March 29, 2020, 01:47:35 PM »
Thank you.

So, I've spoken with the psychologist over the phone and as far as I can tell she seems nice. Of course there was a lot that I couldn't say over the phone but she's going to keep in contact with me until we can speak in person. It's weird because I have no idea what she even looks like because I've never met her, at least with my new CC I can put a face to the voice.
I'm going to have regular phone calls with CC but I know that I'm going to find it impossible to say if I'm struggling and need help. I cannot say the words.
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